Cosi Talks with Special Guest Sidney Smith & Sydney Marshburn – Active Amputees, Talk All Things Adjustability

live so I have tonight the battle of the Sydney’s here tonight we’ve got Sydney marshburn and we have Sydney Smith

so guys thank you for joining us this evening and they are my guests courtesy of Click medical the makers of the

revofit adjustable system so we’re going to be talking a little bit about that this evening and you guys are going to get a chance to ask both sidneys all

your questions about using an adjustable socket and staying active because these two have written the book on that so

we’re going to give you guys a couple minutes to jump on board this evening all right and guys I am broadcasting to

both my YouTube and my Facebook pages so you’re welcome to watch me on either one those of you watching the replay please

feel free to give me a shout out in the comment section and say replay and if you have any questions go ahead and put them there as well I do go back and

check to see the shows after we’ve shut them down to see if there’s any leftover questions there so we got Sean Brown on

board guys those of you who are new to my show you have a small hazing ritual you got to tell me who you are where

you’re from and what’s in your mug I’ve got my click medical mug even though I’m drinking my diet coke what do y’all got

[Music] got my Yeti mug got yours all right I don’t have a Yeti bag

with water cool kids we gotta get Jamie to send you one all right so guys we’re going to be wrapping a few of these off

this evening really nice Yeti mugs so we’ve got Jill coming in from Berkeley we got Sean from Jacksonville Florida

fellow Floridian we’ve got oh a lot of people just jumped on board this is gonna be a good group tonight excellent It’s a Party

all right we got oh [Laughter]

took that one down too fast we got Starla there with tuck in Texas with her Dr Pepper we’ve got Sean with his uh

Publix green iced tea there we go and I know he’s from Florida then all right we got Theresa I haven’t been in a while

from Albuquerque we’ve got Marianne with water from South Dakota Pastor David is on board so it is a party and he’s got

his tea we got Kim there drinking boring water that’s okay we’ll still let you on board Kim we got Emily from Central PA

she’s got her strawberry dragon fruit lemonade refresh she always has the most interesting drinks we’ve got Patricia coming in from Naples Eric with his

lemon water watching me from the YouTube channel we’ve got Felicia from Atlanta and she’s gonna go grab her click

medical Yeti okay so she’s already the winner on the show there we go all right guys we’re just gonna give you another

minute to jump on board this evening okay and Sydney where are you you’re moving this next week right damn yes

you’re moving to tell us about the move that you’re making I will be moving from Murfreesboro Tennessee to

Denver Colorado and I’m that’s a bit of a jump and is that going

to be to help you get closer to kind of The Romp headquarters it is yeah so my apartment actually seven minutes away

so I got really lucky when I was asking that’ll be nice that’ll be nice and then

Sydney where are you hunting right now I saw you you were fishing yes it’s

all for the hunting for me but no I uh I am in Vernal Utah right now northeast corner right by Colorado and Wyoming

excellent all right we got Gene it’s a party guys so we’re gonna go ahead and officially get started for those of you watching the show for the first time

welcome my name is kosi bayoso I’m a physical therapist amputee specialist here in Tampa Florida and as I mentioned

earlier we are uh having the show tonight courtesy of Click medical and we have two wonderful guests Sydney

marshburn and Sydney Smith on board thankfully Sydney marshburn put on her her last name there so we’ll be able to sell them apart when we’re talking to

them guys don’t be shy this evening these folks have been through it gotten

been there done that gotten the t-shirt and they have wonderful life experiences that they will be sharing with us this

evening and also how they’ve been using the click medical revofit socket to help them get back to their very active

lifestyle so we’re going to get into that in just a little bit boy that Diet Coke is really getting me

this evening all right we got Richard coming in from Arkansas with uh his French roast tonight that’s

very nice we got Chuck on board we got gomada there good to see you all right guys so let’s just talk a

little bit about click medical and rebofit unless you guys have been living under a rock you guys have probably already seen one of my click medical

shows either last year or this year they’ve been a wonderful supporter of the show and I gotta say when it comes

to adjustable sockets they are my favorite um so I’m just going to kind of pull out my demo socket here they they hooked me

up here with this one okay so they are the makers of the revo fit adjustable system so with the

revofit adjustable system okay your prosthetist orders a kit like this and

it comes with all the parts that they need to build adjustability into your socket okay this particular is a model

socket so it’s got a lot of action going on you can do a gap design you can do a panel design or you can do a hinge

design okay and the way they’re controlled is with these little boa dials or click reel depending on the

kind that you order okay the panels loosen up I gotta keep

it in the frame it loosens up you put the socket on twist twist twist twist twist twist

twist and as you can see it starts to tighten up now I loosened it a lot so that you can see on the camera how it

works but basically this is how you adjust your socket so instead of having to take your socket on and off five six

seven times a day to adjust the socks all you have to do is just twist the dial and off you go and now with the new

click reel you can forward adjust it to tighten it and then you can micro adjust it to loosen it just a little bit at a

time which I really love that feature so that’s the revo fit and guys I have so many videos on the revo fit I would

encourage you to go to my YouTube channel and you can find all the videos there that we’ve done on the revofit then we have the revo lock which is one

of their systems their suspension system okay so it’s a mechanical lock system we’re going to be doing a whole show on

suspension systems in August with Joe he’s the creator of the revofit system so we’re going to be doing a lot of

suspension on that show and then we have the revo surface which is the one I’m really excited about

that’s this one right here so basically for those of you who are not due yet to get a new socket but you want to put

adjustability into it the revo surface it’s a very similar kit that your prosthetist receives and they can build

it to your existing sockets which for me is just like Game Changer especially for those of you who aren’t sure if this is

right for you or you’re not ready for a new socket yet or maybe you really love the socket that you’re in you like the

shape of it and you just want to add the adjustability to it all right so that is Click Medical in a nutshell Okay and

like I said guys I’ve done lots of shows with them go to the YouTube channel check out all the details it’ll tell you who’s a candidate for the revofit how

you can talk to your prosthetist about this how it works on a day-to-day basis for you okay so I’m going to announce

our first giveaway winner and then I’m going to zip it and let the sydneys take over this show um so guys earlier this week we sent out

a new click medical quiz and I really like this about click medical they really like to learn from the community

they want to know what is it that you’re what are your needs how can they help you and how can they improve their products to reflect that so they’re

always putting out these quizzes that you see me sending out to you and emails and text messages okay so we did a

raffle on that and our winner is Michael Davies so I don’t know if he’s on board this evening but Michael Davies congratulations we’re going to be

sending you a very very nice Yeti click medical mug all right so with that said

we’re going to introduce we’re going to let City marshburn lady source is going to go this evening start off with her

story so Sydney uh was came to me with collect Medical

and we had a really nice discussion and you have quite an interesting medical history that is not very common however

we do have a lot of viewers on the show that share your medical history um so I’m going to let you take over

yeah yeah so my name is and I am an above me

with my left I lost it all years ago a little over a year and a half so it’ll be two years in laid on

um I grew up and I was an athlete student like very serious about

everything I did and then I’ll start catching up to me and I was with a

genetic connective tissue disorder called Eller serum and I was diagnosed with sounds just kind

um essentially what ehlers is a defect in collagen

so I am one of the most people my skin is more elastic locate things frequently and that can be one very painful

whatever a joint yeah and for me it

sounds life-threatened path if you want to call it that um my skull started

dislocating from the rest of my fine it was gradual internal

decapitation and severe brain regression so I always

and it just kind of attributed um you know you’re an athlete you’re a

lot of required your shoulders they just come out that’s what and um it took

a senior in high school when I fully diagnosed and it was surgery after

surgery and um so when I was a senior in high school right

excited I had my first spinal fusion and it was anal Fusion which caused a rare

compliment complex regional pain syndrome so my leg was just then it would

be blisters and become get infected and hot lasts like

six months at a time it’s very it was very painful it was very scary on my last infection

in August of 2021 becoming more septic-like

so um and it had to go 36 hours later so

that kind of differentiates me between other people who have had

if you had no pains syndrome and you have

mine was right Collective yeah I mean I’m doing grand

um I went to tissue disorder that’s not gonna go but right now the life and taken care of

so you know balls to the wall is exciting and I get

to just do with life patterns so I’m just excited to be back

and that’s amazing like I said we do have quite a few viewers that have CRPS and it’s heartbreaking to hear sometimes

the symptoms and the lack of quality of life as a result of having that pain um so to see someone like yourself who

has such a successful outcome after the surgery I know is going to be encouraging to many of my viewers I got

one question here let’s see Emily said would it be helpful for someone who deals with lymphedema and deals with fluctuation and swelling I was supposed

to get my prosthesis today and tried it on it didn’t fit my leg was a bit too swollen so Emily yes in the sense that

having an adjustability in your socket definitely is something for someone who fluctuates a lot in volume because you

have that lymphedema and I know that you’re being followed by a lymphedema specialist um the biggest thing that you want to

focus and make sure about is that there’s not over compression in the socket but you would have to be aware of that even if you were using socks as

management so that’s something that someone who has lymphedema always has to be aware that they’re not creating a

tourniquet effect with the socket whether they’re using an adjustable one like the revo fit or whether they’re

using socks to manage their fit uh but great question uh let’s see

we’ve got lots of people just starting to pour in some of their questions so let’s try to see if we can keep up with this tonight uh Sean says just found out

about these I think people that are very active to know about the underliners yep and been talking to the process about

click medical um and Sean one of the things I really love about this particular adjustable socket is I’ve seen the whole gamut of

users with this socket I see folks who are not very active um that are getting some really great

results because they have underlying medical conditions that cause a lot of swelling a lot of shrinkage throughout

the day and then folks like both the sydneys here that they are on the other side where they’re very very active and

they need the adjustability to help with their activity level so Sydney you’re you’re just out I mean less than two

years out most of my patients they’re still undergoing limb volume changes from the actual

surgery and remodeling so can you talk to us a little bit about that yeah so

um with my story specifically contracted osteomyelitis so bone

infection in my residual a few months after so I had one

um edema and then just the swelling and from that so aren’t sure what my um

going to you know just it wasn’t gonna stay the way it was this is

I think well I think I was after my of um or just

getting around to like Year One be where it actually started

it started shrinking especially I was a late rumor if you wanna that way

um and now um I actually I got a socket and

now ready for a new one and I was a month to go but insurance

all that kind of yes yes has been extremely helpful to you just just

to continue being able to put my my leg on and this is something that for

my folks who are new to being amputees that are still in those first couple of years I think this is a huge frustration

I run into with my patients is um what’s going on with my limb why is it shrinking why is it changing so much

I finally get a comfortable fit in the socket and now it doesn’t fit anymore it’s too loose um so it’s nice to see that something

like this click medical socket can work for someone who’s new to being an amputee and it’s a lot less frustrating than having to learn how to manage all

those socks throughout the day uh let’s see Sean says I really want to get back

to long distance running Sean stick around because Mr Sydney is going to tell you a little bit about that a

little bit very shortly um I do apologize guys I know there’s sometimes a little bit of the sound cutting out sometimes when we have more

than two people on the show sometimes the sound Cuts in and out so we will try if there’s something that you guys want

to ask either of the Sydney’s please put it into the comments section and if you can’t hear their particular answer let

me know and we’ll try to kind of translate and get those answers out there with the sound and audio video

uh let’s see so Sydney tell us now a little bit about the activities that you’ve been able to get back into

so when I was I made a promise to myself to just say yes to everything

and see where and so very exciting medical mindset and they’ve been they’ve

been so great I actually cycling and

I was nice beforehand that say yes to everything and so I did

37 Rocky Mountains uh before my one year post-op and um yeah

really just any for and right now I’m really excited um hope to start training for the para

Alpine Ski and Denver right here Colorado is a great place to do yeah you

get some good skin here right here and if the hairless ever gets a pair of water pools team I would love to get

back and often is like it’s becoming a big

big thing just not here yet fingers crossed we we get our

that’s awesome and then what’s going on tell us about romp because you’ve recently partnered with romp

yes yes so early at the end of January I’d be came romps events and Outreach

manager to I have loved every minute working with them I work on the

fundraising and their campaigns are in the middle of Mobility man so it is not too late anyone

can join we are our Mobility while racing funds for people who wouldn’t

so you know join get your frame and help us give empty to you

wonderful and Sydney if you had any advice for the folks who are new to being amputees what would be your advice

right now yes um my the best I’ve received is

be okay with being creative there is a long list of things that you

know nothing for for me is impossible I just have to maybe work a little on my

way around these adaptability situation

um you know like click medical understand that and we all have to adjust

so the biggest piece of oh and go easy on yourself Not Gonna Stand just walk out of the

Hospital like I’ve lost their limb differently don’t compare yourself to others dear said

then so guilty of this myself it is really like

just be open to trying new things telling young people you can make

the best of of a bad situation and to do so

and say yes to everything yes just say yes

I love it okay uh let’s see so click medical says Miss Sydney was our SBT

gravel giveaway winner she bit 37 miles and ended in the pouring rain that is dedicated right there

um guys what I’m gonna go ahead and do is we’re going to try to we’re going to do our next giveaway and then we’re

gonna have Mr Sydney uh tell his story and Miss Sydney I’m gonna go ahead and put you in the green room just to see if

we can help with the audio situation but I’m gonna have you there just in case anybody has any questions we can bring you bring you back on board is that okay

okay all right so guys I’m just gonna put her in the green room she’s not off the show so in case if you guys have any

other questions for Miss Sydney we’ll we’ll bring her back on board let’s see if it helps a little bit with the audio

in the meantime guys we’re gonna go ahead we’re gonna bring you back before the end

um in the meantime we’re gonna go ahead and try our second giveaway so my handy dandy assistant from click

medical Jamie is gonna post a link in that link okay you’re gonna scroll

down and it’s gonna be a link to the new click Medical website they gave it a nice little makeover so if you guys

haven’t been there in a while you guys should go exploring there okay and you’re gonna see a section that says do

you do you present with any of these issues with your socket okay and there’s several questions that they’re asking

you there I’m gonna wait till she posts the link

Jerry can you hear us a little bit better now or Jill can you hear us a little bit better now

takes a minute or two for the answers to come in

all right so click medical just posted the link right there guys go to that link okay

and I want you to tell me of the questions that they ask you there

do you struggle with this that or the other tell me which question resonates

most with you which is the struggle that you struggle with the most of the

questions that they ask you in that link and put it into the comments section Kimberly Kim if you look up click

medical just posted a link there

okay so guys take a look at that link look at the questions they’re asking you and then let me know in the comments

section which of those questions resonates most with you and in the meantime we’re gonna let Mr Sydney we’re gonna let Sydney Smith uh get started

with his story so Miss Sydney talked about how she uh had complications from Eller danlos syndrome and also with

complex regional pain syndrome and then Sydney on the other end of the spectrum um you started out with charcoal Marie

tooth um so you’re gonna I know you’re gonna tell us a little bit about that and guys I do want to make a distinction there is a difference between charcoal

Marie tooth disease and charcoal foot and we’ve done a couple of shows on this in the past there so I just want to make

that distinction now there is a difference between the two all right Sydney I’m gonna zip it and I’m gonna let you take take over for now okay well

thank you no I I appreciate the opportunity cozy for having me on but

um yeah I guess I’ll just start and how far do you want me to go like what I had for breakfast this morning or how where

are we ending this well start at the beginning because uh you know it takes you at the charcoal Marie tooth takes

you a little bit further back to the beginning for you yes yes it does so charcoal Marie tooth is in muscular

dystrophy is um however in my case

um I am the only one in this fam in my family that has this disease my parents my siblings

um they weren’t lucky enough to get this awesome disease so um when I was born I was born with a

normal body um just a real run down um you know my hands work my feet worked

just fine and I didn’t have any problems until I turned about eight years old on the playground I started falling a lot

couldn’t keep up with the kids the doctors were looking at my feet and couldn’t determine what was going on and

then when I turned 12 then the deformities started happening my feet would my toes would hammer my ankles

would turn and I get high arches and that’s when I was officially diagnosed did some tests so so sorts and that’s

when I was officially diagnosed with a disease called charcoal Marie tooth and uh so throughout my youth in in teenage

years and uh into the early stages of my adulthood I struggled with this disease

I had lots of surgeries to try to fix them you know just corrected surgeries to keep the ankles straight and and

eventually I got these braces I got these braces uh they kind of look like

the Forest Gump braces if anyone’s seen that movie um so ironically if anyone’s seen that

movie um that’s about right when I got the braces too so at the playground everybody said run Sydney run just like

from the movie run Force run um and so I had these braces growing up uh but uh even that’s with the braces

they weren’t working well uh eventually um I started getting ulcers and

infections because the braces would just start wearing on my skin and then I’d start breaking the bones the feet would

just deteriorate it was a very you know the disease itself sharpenery too it

could probably have heard of it because it’s actually not that rare but in some

cases some types in in my scenario uh it

was pretty pretty rare as far as the severity of it and then eventually when

I turned 33 years old I went to the doctor and I said you know I couldn’t

walk couldn’t do much any anything I had a small family um by the time I had two kids and one on

the way and I was unable to do things that I wanted to do I was just real frustrated and

um kind of angry a little bit uh with with my scenario thinking you know life

is not fair what was me you know that kind of talk and uh I just went to the

doctor’s like there’s got to be more than life and at this point I I guess I was stubborn and I waited too long or

whatnot but the doctor says there’s not much more we could do with your feet um that’s going to give you any Mobility

function and um you know my suggestion is that we amputate your legs

um and so uh in 2015 we decided to amputate the first leg and

um fortunately it didn’t go so well uh shortly after that I got an infection in

the bone and uh being a young amputee I live in a small farming oil-filled Town

not a lot of I don’t know any amputees actually at this point I just assume you know feeling sick and and having fevers

was normal when you lose a limb and the little did I know I was getting this major in fact action that was eating my

bones and so um when I finally went to the doctor again after being so sick

that’s when they decided that they needed to amputate higher and at that point we made a decision that we’re

going to just do the other leg at the same time so um like I said in 2015 I became a double

amputee um I’m below below the knee uh one’s a little bit higher just because we had to

make some changes there and and that’s kind of the beginning of uh of the uh the uh the amputation story

and part two of Life happened yeah so how was that have I mean you had three

children [Music] um undergoing major recovery and having to relearn Mobility so can

you talk to us a little bit about your experiences as a young father yeah that was the hard part just because

you know I you know as the breadwinner and I was really worried that was I going to do the things I love such as

you know being in the outdoors and fishing and playing with my kids it was going to hold a job is my wife going to

find me attractive um am I gonna you know you know have a life or is it just going

to be surgery after surgery after surgery yeah and uh you know one thing that I remember when I you know I think

everyone has this experience when they first notice them you know your limbs are gone I remember looking under the

sheets and I was like oh you know after after coming too and you know crying a little bit and my wife came into the

room she’s like you know no it’s okay it’s okay and I’m telling my wife you know I’m so sorry honey you know you got

to deal with me as a caretaker now and all this mushy stuff and he says if you want to leave me you can do that

um you know I give you I totally understand and my wife looked at me she says you know I could but now that

you’re double amputee um I hear that handicap parking is pretty good I like life

we’re gonna stick it out because uh handicapped parking is pretty amazing but no my wife has always been my anchor

with that kind of stuff and and uh you know it at that point it gave me a spark

to you know to look at life to be more positive to try to do everything the doctor said uh kind of like Sydney’s

story I loved that she said you know you’re going to be yes person you know and that’s you’re gonna and not be

afraid to do that because that really is what it takes and um I I I I I I was in the hospital when

I was making a a kind of I guess an irrational decision um during recovery and and

Rehabilitation um I was watching on TV the Iron Man and

uh that’s when I looked at it I was like I’m going to do this this is what I want to do and people thought I was crazy you

know they thought I was I need some adjustment to my pain pills um I was talking crazy but

um I was just I was just super super

um you know I guess inspired to do this race and so that’s where it all began

that uh you know it was a big goal obviously it was huge uh but I wanted to take it step by step

um you know I wanted to learn how to to walk with prosthetics learn how to to swim to bike to run

um and uh uh you know step by step and do my first 5k and then you know years

go by and I did my first triathlon and and um Eric senior months go by did my first

triathlon and I worked my way up to to the point where I finally got to the to participate in Iron Man and uh four

years later that’s amazing now this is the part where I’m gonna pause for a moment because I know that a lot of times for my viewers I’ve gotten

comments of wow this person’s amazing but I feel discouraged because I see them doing all these amazing things and

what they don’t see is the beginning part and what it took to get to the

amazing things um so can you talk to us a little bit about those first weeks and months after the surgery of

getting back to your Mobility again like what that entailed yeah no I sorry I have on my phone some of the

questions and some of them there was a few comments that I feel you know bad because I I totally

um you know it I feel for some of the people like it’s I I’m not trying to brag I’m I feel

honestly feel blessed that you know some my scenario worked out you know with my spouse and and so forth and and I know

that’s not the case for everybody and I and I feel your pain and I’m I’m deeply sorry that that this has to happen to

you but um I’ll tell you it hasn’t been you know for me all roses and unicorns and

glitter um you know there was some attempts of suicide uh through the

process uh you know just because I felt as a man

um that I was a burden to people um and so I’ve wanted to to stop that

and and basically make a selfless decision that hey I’m not going to cause

pain to other people and then you know have to be a financial burden and have to worry about those things and

and for me you know it was kind of ironic during this whole time of uh

learning to walk at the same time my my daughter who’s now 10 years old she’s

learning she was learning to walk at the same time and the thought process came to my mind

is you know here’s this little girl trying to learn to walk and she doesn’t care that her dad is learning to walk

too she loves me just who I am and that’s the thing about children they’re just so darn accepting and I love that

about them and they love you for who you are and it’s not fair you know obviously

I at the time I I blamed God for this disease that I’ve gotten but it’s uh it

was unfair to my kids if they had a dad that committed suicide and that’s they

don’t deserve that and so I didn’t want that for them to have that life I may have had a life where it’s going to be

you know struggles and or not the best cards so to speak but my kids don’t deserve that and so that was that’s what

was really got me out of the dark spot mentally and when you get out of that dark spot mentally the physical parts

the easy part not always there’s some days that work tougher than others physical part was really or the mental

part was really what puts you up to the next day and the next day I know that’s kind of a long way to

answer your question no but I think people need to hear that because oftentimes I hear you know I’m not an

amputee myself I’m a breast cancer survivor and that’s its own story chapter there but I’m not an amputee and

I cannot relate to my viewers and patients um the way that you can and I think many times they need to hear this

um The Good the Bad and the Ugly and they need to hear the reality of it and to know that they’re not the only ones going through it and that there is a way

out of it um and I think what you said there about your duty as a father

your duty to the people in your life that loved you that to do to take that other route

would have not been the best thing for your family so I’m so glad that you’re here today to

tell us this thank you thank you and we have Jerry Terry says I’m just starting to walk as a bilateral amputee and it’s

tough but I’m determined to work hard and you give me hope Sydney and guys we we know if you’ve been on the show we

know that the statistics for bilaterals who walk are are sometimes a little Grim but what I say to folks is do you want

to be a part of that 10 percent so it’s about 10 of bilateral amputees who are functional ambulators and

getting out there and and living life and and doing all the mobility and it’s a question of do you want to be a part

of that 10 percent um so we got a lot of wonderful

certified bamf and I had to think about that in my head for a moment as to what that meant I was like oh right

thank you and way to go Jerry you keep it up that’s right out of bed every day

that’s what you gotta do that’s right and then Emily said there was a couple on the wall on NBC where

the husband was a quad amputee from a roadside bomb overseas and he learned to walk with his child as well that’s a beautiful iron sharpens iron there we go

um so tell us a little bit about um just the nuts and bolts of those first

few months were in terms of were you receiving Physical Therapy um what were the obstacles that you ran

into you know with two new sockets you were having to learn to use two new sockets at the same time I think the hardest part is like I went

to work right afterwards because I you know we needed them the money and so forth and so it the hard part was

getting to work learning to you know getting around in the crutches my job was an office job I managed a hotel it’s

just a small one here in town and uh the the biggest pain was was just like

because I it was an office job and I couldn’t wear shorts and so I had to wear pants all the time

um and so it was just like just my with my limbs shrinking all the

time having to constantly go to the bathroom adding socks taking off socks trying to find that like perfect fit

because there’s a double amputee you you know when I’m you know fresh on both limbs I can’t baby one because if I baby

one the other one’s Gonna Fill it and then I go back and forth it’s it’s just it’s monotonous

you know sometimes I wish I’d be like golly I mean so I’m so jealous of the single leg amputees and I’m just like

it’s like blues and a pinky toe come on guys but I’m not I definitely know that it’s not not in that case but

um but yeah I I tell you it’s uh the first I I’d say the first year really

was just the Battle of trying to figure that out and I I really wish I had something like the Click at the time

because it would save me a lot of trips to get to the boys bathroom pull down my

pants put on the socks put them back on and so forth so I would have been would

have been nice that was probably the biggest pain I remember so many times so and then it’s just you know the revo fit

if we’re you know since we kind of talked a little bit about the The Click system and and running has been uh where

I’ve you know even today uh because my limb still changes a little bit when I run uh with the pressure and drinking

water and then sweating and and uh you know that that’s help uh first thing in

the morning even then I’ve been amputee now seven years um first thing in the morning everything’s still puffy and it’s nice

to to not feel it always hurts the worst in the morning but then if you know if

it’s not super tight then you know within in an hour so then it hurts again so it’s nice to have that click system

so when did you run into when did you learn about click medical uh it was actually through amputee Blade Runners

um they’re out of Tennessee yes they were on my show a couple months back yeah yeah that’s where it all began

you know when I was training for the Iron Man they were they heard my story and um that’s where I got connected with

them and got into running blades and um you know at the time I I they just

called me say hey do you want to try this click system it’s it’s the newest greatest sexiest thing out there right

now and so I was like you know I didn’t it’s like Holly there’s one more part I have to worry about you know but it or I

was I had this weird paranoia about weights like all the more weight that you have on your leg the you know harder

it is to run long distance but it’s super light um and uh when I went out to Nashville

and they installed it and it was pretty pretty sick like it I was gonna say it probably took weight off because you

didn’t have to wear as many socks yeah no that was that was the ticket and I would that it it I guess I’m stubborn

now I’m 40 years old I’m I guess considered old um change is hard for for some people at

this at my age and so um I had a hard time you know

I guess exploring something new I was like well if it’s not broke why fix it right right it’s so so trying out the

click system was like oh this is nice I do I I do admit it it is a nice setup

and do you have the are you using the new click reel or are you using the boa dial I’m using both so this one this

one’s the the click and then the other one’s the dial okay okay and then I see you have the Gap design

yes yes I love that I do so very nice yeah and then I have a

void you can kind of tell okay boards inside that side because I do that’s where I have a kind of a bony limb and

that’s where most of my impact hits anyways so got it Liz is saying 40 years old ah

you’re still spring chicken Cindy I’m sorry uh let’s see Emily says my

swelling is always better in the morning after my legs have been elevated for a while and that is you know a little bit more particular to lymphedema um but yes

they’re usually for most folks they’re swelling as their limbs a little bit more swollen in the morning because of

the rebound effect that after you’ve been wearing your prosthesis all day long and then you take it off at night

and there’s just a little bit of a rebound swelling um so sometimes I tell folks to wear their shrinkers at night and that also

can sometimes help with the swelling in the morning uh Richard says I have T-shirts that old

okay so Ben Gregory says sorry I just joined did you say the percentage rate for bilaterals to be fully ambulatory is

only around 10 yes but I will say that with an asterisk on it van Gregory um I actually have a really really hard

time finding research on bilateral amputees that’s a statistic that was around back when I was first starting to

practice 20 years ago um and I can tell you not from any official research but just you know in

working with the limb loss community over years that’s kind of an accurate representation that being said that

being said the 10 that I see that are functional ambulators it’s not necessarily because they had a

physical Advantage it’s because they are determined and they are as one person put it bamfs okay the the people I’ve

worked with some bilateral amputees myself that they came into my clinic and on the inside I’m going oh dear I don’t

know if I’m going to be able to get this person to walk again but they are sheer determination got them walking and it’s

something that I see more often in my bilateral patients than I’ve seen in my unilateral just the sheer determination

to say we’re gonna make this work and we’re gonna make it happen um so I put that percentage out there

not to discourage people or not to um scare people but it’s to say there is a

10 out there so do you want to be a part of that 10 percent and that’s how I phrase it all right let me see if there’s any

other questions down here so tell us a little bit uh Teresa

Tom says wait till you hit 60 and I’m running the NYC marathon in November

right there now guys for those of you who don’t are not familiar with the Iron Man Sydney this is where you are going

to have to brag a little bit tell us the distances and what it is that you do for an Iron Man oh it’s for training all

together oh no no like what the race entails is there some folks out there they might hear the word Iron Man but

they don’t understand like this is what you gotta do yeah when I say the Iron Man to like

kids when I go like those little comment things

no the the Iron Man is the I guess the Banff since we’re on that topic of

triathlons it is a 2.4 mile swim and then you bike for 112 miles and then you

run for 26.2 miles you finish it up with a marathon yeah just top it off but you

got to do it under 17 hours that’s that is the ticket all in one day and they don’t they don’t really make an

exception for you know challenged athletes you still have to go that whole distance that’s incredible that’s I mean

I’ve known friends of mine who are able-bodied athletes and they were training for almost a year just to just

to finish that race um so I can only imagine your training schedule must have been insane yeah no

you nailed on the head it was a it was straight up a whole year from top to

bottom you know every day except first you know I take a day off on Sundays to rest but

um you know just eating a ton of calories you know trying you know training during lunch break sleeping a

lot because it’s just so exhausted yeah it ended up being like a part-time job and I I felt bad because I missed out on

a lot of cool family vacations because I was you know out there while they’re playing on the lake on the out in the

corner swimming you know in circles so guys we’re gonna go ahead and put in

our third giveaway So Jamie is going to put a link up for us and when you get this link and I’ll put

it up to I think I’ve got it here

all right when you go to this link sorry I’m like flipping through screens

here all right so both click medical and I we

posted the same link you can pick either link guys okay go to this link you’re

going to see a picture of Sydney and he’s going to look a little different because he’s got a big old big old

Grizzly beard going on right there in that picture right go ahead and click on that picture and it tells a little story

about Sydney and I want you to tell me what is it that the click medical socket

has allowed him to do his quote and I want you to put it in the comment section and by the way our last one oh

my gosh I forgot to say Tom you’re the winner for the last giveaway huh sorry Tom Mister so for your Marathon your NYC

Marathon you’re going to take your click medical mug with you the whole time okay the whole Marathon

there you go so Theo is asking how do you train range of

motion so from a physical therapy standpoint that’s obviously a big one right there right we want mobility and

then with strengthening we create stability right yeah so when it comes to range of motion

it’s finding out where the person is missing range of motion or in cases like

um Miss Sydney where she might have had too much range of motion due to her hello down low syndrome okay so finding

out where the deficiencies are in the range of motion but as I’ve gotten older as a therapist as I’ve become an old

fart therapist I’ve learned to just kind of look at a person individually and say okay if this person is missing range of

motion is it contributing to any problems okay because as our bodies age our bodies kind of have their unique way

of accommodating and compensating for things sometimes those compensations are good sometimes those compensations are

not good so let’s just take hip flexor contraction right do you have any issues with hip flexor tightness Sydney yeah

all the time all the time right it

is bilaterals unilaterals below the knee above the knee hip flexor tightness is a problem okay or it’s present it’s

present but with some of my amputees they may only have five degrees of hip flexor tightness I might not necessarily

be too concerned about that okay for me I take a look at the gate pattern I take a look to see if they’re having any

issues with pain or any issues uh with gait deviations and is it coming from the hip flexor tightness or not someone

who’s an athlete like Sydney then yeah you want to have a lot of good range there because especially when you’re doing your runs you want to be able to

have a lot of good hip range of motion there available and when it comes to training it though I have a lot of

tricks in my bag but I love to do Dynamic stretching okay so basically that means that you’re stretching while

you’re doing movement in the muscle okay and I’m actually going to bring Miss Sydney back on board

all right so we got Miss Sydney back on board hopefully we’ll try to see the audio is

working a little bit better there thank you for waiting so Sydney one of the one of our viewers was asking about how to

train range of motion and I was explaining a little bit about how when there’s tightness especially in the hip

flexors we work on uh Dynamic stretching everything like that but for you you’re on the opposite end of that Spectrum so

do you find that with LR down I always mispronounce that one Eller down low syndrome that you have issues with too

much range of motion and you have to protect those joints absolutely yeah so my RP after surgery

was actually all this strength in those muscles and everything along that line

because I had range of motion and that like goes and I’ve already

got everything you would aim right before if you were so for me it looks

like a lot of straight strengthening a lot of to not use your hamstrings not

use you know those muscles that I don’t have anymore um so it’s a lot of just strengthening

for me here we go and then the Mr Sydney what

is it that you do for your range of motion training like for your Hip Flex or tightness what are some of your favorite exercises

so um first of all like stretching is a huge one and um I actually sounds kind of silly but I

when I swim I don’t swim with prosthetics and I I’m out in the water with all the people that do the um the

aerobics you know I’m sitting there and I’m jogging in the water to just open

trying to oh wow yeah like just kind of waiting in the water and just what it’s

doing though it’s like I’m not putting pressure on my limbs but it’s it’s just getting that muscle memory going to get

that range in and while I’m doing that I’m every time I extend I don’t know

it’s hard to seeing this video extending that motion I’m like using that to

stretch to just and it just feels so good right there on that hip bone um to get that range motion and just

more the more and more I’m I guess jogging in the water it it helps and if

you can’t do that like I would suggest like having some floaties or something like that and then just using using your

limb just going to town I mean that it sounds silly I just made it up and all of a sudden it’s like feels pretty good

no I’ve never heard that before and I like it I like it that’s a great one especially with the water

um so let’s see Lino was asking do we have a link for dynamic extraction yes so Leno right here I have a program that

I created it has over 150 exercises for above and below the knee amputees and in

it I have a huge section on flexibility there so you can click on that link and

there’s videos and there’s also a books available as well uh so yeah Sean is green definitely with

the water aerobics and Jerry says water would be awesome for stretching and guys I love it well I live in Florida so for

us it’s really easy we have year-round access to pools and beaches um so I am constantly sending patients

over to the YMCA for their water aerobics course and it’s wonderful it’s wonderful plus I hear they get the

best gossip there in those groups

all the ladies there um so Mike says the adjustment of tightening the socket gives me a better

fit with the light bulb shape of my socket yep because one quick click can make all the difference in the world and

definitely for folks who have um especially the neatest articulations and the signs amputation that they have kind

of like a bulbous end um that can make it kind of tough to get into that socket having a socket like

the Click medical especially with like a hinge design really makes it a lot easier to get in there my limb is a Ertl

uh proceed so it’s it looks kind of like a light bulb so that’s interesting do you have erdle on both one broke when it

got infected okay one one’s still there and the other one broke and do you find I’m just curious I don’t

meet too many folks with the urinal procedure do you find that you have the advantage on the one that’s intact for the weight-bearing into it

honestly yeah sometimes okay it’s and sometimes no uh okay the only reason why

I like it’s hard to say because the erdo procedure one is a longer limb so there’s less surface areas got it so I I

I’m not I would say if the options there go for it but if it’s it’s it don’t let

that be an excuse like oh I don’t have an Ertl so I can’t run so obviously absolutely not there’s ways around

everything like that okay and we just got our third winner Kim Kimberly Richards you’re the winner

for the third giveaway so you’re gonna get a cheer up and put your name down here to make sure we don’t forget guys

for our three winners we have Michael Davies Tom McIntyre and Kim Richards please please please please email me my

email up there okay email me and send me your addresses

and we’re gonna send you the yeti click medical mug yes all right now I’m scrolling through

here Sydney said Sydney is stud local

inspiration and heroes so Sydney Mr Sydney tell us a little bit about what you’re working on now with your hunting

organization I which I think is just so cool about that well no I appreciate it

so I guess one of the things you know that I was my goal to do is the things

I’ve always wanted to do or Hobbies basically take it to the next level and that was hunting

um and when I am I’m out hunting and hiking in the woods I’m not thinking about you know putting on my legs or or

that whole process um and so just that whole idea of you

know getting into the outdoors is the medicine to escape from the struggles of life and that’s where we have a

non-profit here in in Utah and Texas and a few other states called disabled Outdoorsman and uh it’s a non-profit

organization where we take people out of all disabilities um you know chair-bound or amputations

um in getting into the outdoors we do big events uh where we do like uh for

example in a couple weeks we’re doing a youth uh disabled youth shed hunt uh

where they go out finding antlers on the ground and we have a special spot that

we have reserved for these kits and then um in the fall we take out a lot of people hunting camping fishing and uh in

the winter we have a big huge ice fishing event where we had about over 200 people to our event out here where I

live and we we introduce them to the ice and get them get them their first fish on the ice oh my gosh

[Music] where can they go uh they can go to

disabledoutdoorsmanusa.com or my chapter here in Utah is do utah.org

and I’m actually typing in as well both of your Instagram handles so for Miss Sydney this is her Instagram handle

um and guys you really would love to follow these folks it’s really just amazing there we go

and then for Mr Sydney he’s on at try no feet did I get those right guys did I

get your handles right yeah okay and then uh click medical Jamie went ahead and posted

um for the disabled Outdoorsman uh website there

okay there oh she posted two of them wonderful yep yep okay

all right guys we’re gonna go ahead and wrap it up for this evening but I do want to say a very special thank you to

Sydney marshburn and Sydney Smith both of the Sydney’s this evening thank you guys for sharing your stories with us this evening

um and for being so open and honest about everything that you went through and and how you’re working with everything right now

um and a special thank you to click medical uh I absolutely love working with your team and thank you so much for

the continued support that you’ve shown this show for the past almost two years now

um so guys if you do have any questions about the click medical revofit socket if you have any extra questions for the

Sydney’s you’re more than welcome to email me directly and I will find these answers for you

um so guys thank you once again thank you for letting us be a part of your lives this evening and we will see you

next week same bat Time same bat Channel foreign